Wednesday 19 October 2011

Medicine thrown into crisis by stem cell ruling - Science, News - The Independent

Medicine thrown into crisis by stem cell ruling - Science, News - The Independent: "British medical researchers have condemned a Europe-wide ban on the patenting of stem cell inventions derived from human embryos – setting back possible new treatments for a range of disorders, from heart disease and diabetes to blindness and Parkinson's."

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AVI BioPharma - News Release

AVI BioPharma - News Release: "AVI BioPharma, Inc. (NASDAQ: AVII), a developer of RNA-based therapeutics, today announced data presentations for eteplirsen (the non-proprietary name assigned to AVI-4658), the Company's investigational exon skipping therapy for the treatment of Duchenne muscular dystrophy, at the 16th International Congress of the World Muscle Society taking place Oct. 18-22, 2011 in Almancil, Algarve, Portugal."

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Study in Need of Boys with Duchenne: MRI and Biomarkers for DMD (ImagingDMD)

Study in Need of Boys with Duchenne: MRI and Biomarkers for DMD (ImagingDMD): "This study focuses on developing Magnetic Resonance Imaging (MRI) as a tool to monitor disease progression in Duchenne and to serve as an outcome measure for clinical trials. The aim of the study is to determine whether noninvasive MRI outcome measures can replace muscle biopsies in evaluating the effectiveness of new treatments in future clinical trials. A second goal of this study is to characterize the progressive involvement of the lower extremity muscles to help guide the design of future clinical trials. This study is funded by the NIH – NIAMS/NINDS. "

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Tuesday 11 October 2011

Duchenne petition - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy

Duchenne petition - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "Action Duchenne member Muriel Sherlock has created a petition on the government's e-petition site, calling for more funding for vital Duchenne research.

With almost 500 signatures already, it's really important that we all share it with our contacts to get as many signatures as possible.

As Muriel says, 'The British government need to give some of our taxpayers money to find a cure for something that should have been cured years ago'. "

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Friday 7 October 2011

First NIH-funded personalized drug development center in US will focus on muscle disease

First NIH-funded personalized drug development center in US will focus on muscle disease: "The first Center of Research Translation (CORT), focused on personalized drug development for Duchenne muscular dystrophy (DMD), has been created through a $7.9 million grant from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health. The 5-year grant was awarded to a consortium of academic laboratories at Children's National Medical Center in Washington, DC, University of Pittsburgh in Pittsburgh, PA, and Carolinas Medical Center in Charlotte, NC."

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Monday 3 October 2011

Champion dancer cutting hair for charity

On 30th October 2011 11 year old Champion Dancer Chloe McClean from Edinburgh is raising the profile and funds by supporting two charities.

Chloe has been growing her hair for a while so that she could have it cut and donate it to www.littleprincesses.org.uk which is a Charity that makes wigs for kids with Cancer.

She also thought it would be a good idea to do this as a sponsored event and raise money for Action Duchenne at the same time in support of our son Logan Mitchelson (www.flingforlogan.com)"

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