Action Duchenne Love Runs – there’s still time to register and be officially timed - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy

Action Duchenne Love Runs – there’s still time to register and be officially timed - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "We’re in the final few days before the Action Duchenne Love Runs for 2011. It’s still not too late to register your entry for the 10k and get a chip so that your run will be timed. And of course you can just turn up on the day."

Parent Project Muscular Dystrophy: 2011 Advocacy Conference & One Voice Summit

Parent Project Muscular Dystrophy: 2011 Advocacy Conference & One Voice Summit: "February 14 will mark the ten-year anniversary of the introduction of the MD-CARE Act, the first muscular dystrophy legislation passed by Congress. PPMD led the charge for this critical piece of legislation, which established the National Institutes of Health (NIH) Muscular Dystrophy Coordinating Committee (MDCC) and the Centers for Disease Control and Prevention (CDC) data collection on muscular dystrophy initiative. The MD-CARE Act also called for the creation of scientific Centers of Excellence, named after the late Senator Paul D. Wellstone, across the country to accelerate research on muscular dystrophy. In 2008, again under the leadership and commitment of PPMD’s advocacy campaign, Congress extended the MD-CARE Act to continue funding vital research."

Research Review No. 28 Some new Drugs. - Karl2346 - Stopwasting - Action Duchenne - Fighting for a cure for muscular dystrophy

Research Review No. 28 Some new Drugs. - Karl2346 - Stopwasting - Action Duchenne - Fighting for a cure for muscular dystrophy: "While we are waiting for curative treatments such as Exon-skipping, and other types of gene therapy to become available, it is important to keep the DMD patients as able to maintain as much muscle strength as possible for as long as possible. This is because generally when something in the body is lost it is usually lost for good. Currently only steroids are in use to maintain muscle strength longer, but generally they only delay it for about two years."

We need YOUR help to further our Advocacy efforts in Washington, DC

Google Reader: "We need YOUR help to further our Advocacy efforts in Washington, DC
from Fling for Logan by garethmitchelson
Google Reader (27): 'We need YOUR help to further our Advocacy efforts in Washington, DC!'
How can YOU help? We need you to make a phone call and send an email!

ACTION 1. Phone Call: Please take a moment to CALL your Senators and Representatives and urge them to sign onto our multimember letter being circulated by Representative Matsui in the House and Senators Wicker in the Senate.

Wondering what to say when you call your Senators and Congressman?

Dont worry, we have provided you with a script: Senate Phone Script House Phone Script

To look up their phone number click here

ACTION 2. Send Action Alert NOW: Email your Representative and Senators-PPMD is requesting your support by clicking through our email action alert below. It takes two minutes!

This simple one step alert will automatically send our message to your Senators and Representative and will also allow you to forward the message to friends and family who may also want to support our Advocacy Agenda.

Click here to send an email to your members of Congress!"

Duchenne Foundation

Duchenne Foundation: "Welcome to the homepage of Duchenne Foundation, the only
national non-profit specifically for Australian families affected
by Duchenne muscular dystrophy."

Son Shine Awards - Duchenne Foundation

Son Shine Awards - Duchenne Foundation: "The ‘SonShine’ Achievement Awards are designed specifically to celebrate the achievements and strengths of boys with Duchenne muscular dystrophy. "

Biglycan protein

A novel potential therapy based on a natural human protein significantly slows muscle damage and improves function in mice who have the same genetic mutation as boys with the most common form of muscular dystrophy, according to a paper published online Dec. 27 in the Proceedings of the National Academy of Sciences. further details here