Monday, 25 July 2011
BBC News - Molecular scalpel hope for Duchenne muscular dystrophy
BBC News - Molecular scalpel hope for Duchenne muscular dystrophy: "A 'molecular scalpel' shows promise in patients with a deadly muscle wasting condition, according to researchers."
AVI BioPharma - News Release
AVI BioPharma - News Release: "The Lancet Publishes Clinical Trial Data That Demonstrate Statistically Significant and Dose-Dependent Expression of Dystrophin in Duchenne Muscular Dystrophy Patients Treated With AVI BioPharma's Eteplirsen"
Friday, 22 July 2011
Coach to Cure MD Set for September 24 Games - AFCA.com—Official Site of the American Football Coaches Association
Coach to Cure MD Set for September 24 Games - AFCA.com—Official Site of the American Football Coaches Association: "For the fourth year in a row, college football coaches nationwide will join together in support of the Coach to Cure MD program, which will be held during games of Saturday, September 24, 2011. The rapidly growing annual effort has raised nearly a million dollars to battle Duchenne muscular dystrophy, and should easily top the million-dollar plateau in 2011."
Thursday, 16 June 2011
Parent Project Muscular Dystrophy: Education Matters
Parent Project Muscular Dystrophy: Education Matters: "Education Matters Guides
To better assist parents and teachers in providing a fulfilling education for the student with Duchenne, PPMD has created the following helpful guides:"
To better assist parents and teachers in providing a fulfilling education for the student with Duchenne, PPMD has created the following helpful guides:"
- A Parent's Guide
- A Teacher's Guide
- Adaptive PE
- Learning & Behavior in Duchenne
Make sure that your school has these.
Wednesday, 15 June 2011
Biglycan Treatment Shows Promise in Muscular Dystrophy Mouse Model
Biglycan Treatment Shows Promise in Muscular Dystrophy Mouse Model: "Biglycan Treatment Shows Promise in Muscular Dystrophy Mouse Model
Treatment with the protein biglycan reduces muscle damage in a mouse model of Duchenne and Becker muscular dystrophies (DBMD), according to new research supported, in part, by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Dystrophin deficient (mdx) mice given systemic injections of purified biglycan were less susceptible to the loss of muscle strength that characterizes the disease. The study was reported in the Proceedings of the National Academy of Sciences"
Treatment with the protein biglycan reduces muscle damage in a mouse model of Duchenne and Becker muscular dystrophies (DBMD), according to new research supported, in part, by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Dystrophin deficient (mdx) mice given systemic injections of purified biglycan were less susceptible to the loss of muscle strength that characterizes the disease. The study was reported in the Proceedings of the National Academy of Sciences"
Parent Project Muscular Dystrophy: Home
Parent Project Muscular Dystrophy: Home: "Dr. Brenda Wong and her colleagues at Cincinnati Children's Hospital Medical Center in Ohio are actively recruiting boys with Duchenne for their IGF-1 study: Safety and Efficacy Study of IGF-I in Duchenne."
Wednesday, 8 June 2011
Parent Project Muscular Dystrophy: Home
Parent Project Muscular Dystrophy: Home: "PPMD and DuchenneConnect are pleased to announce that the Clinic Services Resource is now available for patients and families of those affected by Duchenne and Becker muscular dystrophy. All those who receive care in the United States are encouraged to join this dynamic new expansion of the DuchenneConnect Registry."
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