Tuesday, 11 October 2011

Duchenne petition - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy

Duchenne petition - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "Action Duchenne member Muriel Sherlock has created a petition on the government's e-petition site, calling for more funding for vital Duchenne research.

With almost 500 signatures already, it's really important that we all share it with our contacts to get as many signatures as possible.

As Muriel says, 'The British government need to give some of our taxpayers money to find a cure for something that should have been cured years ago'. "

'via Blog this'

Friday, 7 October 2011

First NIH-funded personalized drug development center in US will focus on muscle disease

First NIH-funded personalized drug development center in US will focus on muscle disease: "The first Center of Research Translation (CORT), focused on personalized drug development for Duchenne muscular dystrophy (DMD), has been created through a $7.9 million grant from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health. The 5-year grant was awarded to a consortium of academic laboratories at Children's National Medical Center in Washington, DC, University of Pittsburgh in Pittsburgh, PA, and Carolinas Medical Center in Charlotte, NC."

'via Blog this'

Monday, 3 October 2011

Champion dancer cutting hair for charity

On 30th October 2011 11 year old Champion Dancer Chloe McClean from Edinburgh is raising the profile and funds by supporting two charities.

Chloe has been growing her hair for a while so that she could have it cut and donate it to www.littleprincesses.org.uk which is a Charity that makes wigs for kids with Cancer.

She also thought it would be a good idea to do this as a sponsored event and raise money for Action Duchenne at the same time in support of our son Logan Mitchelson (www.flingforlogan.com)"

'via Blog this'

Wednesday, 28 September 2011

Communication breakdown between nerves and muscles in SMA mouse model

Communication breakdown between nerves and muscles in SMA mouse model: "Researchers at the University of Missouri have identified a communication breakdown between nerves and muscles in mice that may provide new insight into the debilitating and fatal human disease known as spinal muscular atrophy (SMA)."

'via Blog this'

Tuesday, 13 September 2011

Prosensa Advances Three Exon Skipping Candidates for Duchenne Muscular Dystrophy into the Next Development Stage - Prosensa to receive up to £27M in development and milestone payments from GSK - Prosensa

Prosensa Advances Three Exon Skipping Candidates for Duchenne Muscular Dystrophy into the Next Development Stage - Prosensa to receive up to £27M in development and milestone payments from GSK - Prosensa: "Prosensa, the Dutch biopharmaceutical company focusing on rare diseases with an unmet medical need, announced today that they have agreed with GlaxoSmithKline (GSK) to advance three further exon skipping compounds (PRO044, PRO045 and PRO053) into the next development stage under their ongoing collaboration relationship in Duchenne Muscular Dystrophy (DMD)."

'via Blog this'

Tuesday, 16 August 2011

AVI BioPharma - News Release

AVI BioPharma - News Release: "AVI BioPharma, Inc. (NASDAQ: AVII), a developer of RNA-based therapeutics, today announced that it has initiated dosing in a Phase 2 study of eteplirsen, the Company's lead exon-skipping therapeutic candidate for the treatment of Duchenne muscular dystrophy (DMD)"