Making a mark in Northern Ireland - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy

Making a mark in Northern Ireland - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "Action Duchenne will again be making a mark in Northern Ireland this year thanks to the hard work and support of parents Andrew and Yvette McClean.

For the first time in the history of Action Duchenne the Belfast City Marathon, being held on Monday 7th May 2012, will see swarm of our charity tops take to the streets with 31 people taking part helping to raise awareness and funds for Action Duchenne. "

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Action Duchenne joins healthcare professionals in opposing Health and Social Care Bill - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy

Action Duchenne joins healthcare professionals in opposing Health and Social Care Bill - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "Action Duchenne has announced its opposition to the Health and Social Care Bill due to be debated by again by the House of Lords from 8th February.

The Health and Social Care Bill represents the biggest change to the NHS since its inception, at a time when public health services are facing additional financial challenges.
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Action Duchenne patron honoured with CBE - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy

Action Duchenne patron honoured with CBE - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "Helena Bonham Carter, who became Action Duchenne's first patron in 2008, has been awarded a CBE in the New Years Honours announced today. Everyone connected with Action Duchenne would like to congratulate Helena for her fabulous achievement following a year in which she was nominated for an Oscar in the award winning Kings Speech. We looking forward to Helena's continuing support for our work in 2012. "

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Parent Project Muscular Dystrophy: Leading the fight to end Duchenne

Parent Project Muscular Dystrophy: Leading the fight to end Duchenne: "PPMD is happy to be supporting Summit PLC with its utrophin upregulation drug candidate SMT C1100. The funding provided will enable Summit to manufacture a new formulation of SMT C1100 and conduct a Phase I clinical trial in healthy volunteers."

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Help Santa deliver his toys and support Action Duchenne with new Christmassy iPhone & iPad App from Rantmedia - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy

Help Santa deliver his toys and support Action Duchenne with new Christmassy iPhone & iPad App from Rantmedia - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "Download Santa’s Sleigh Ride, enjoy the fun and 15% of proceeds go to Action Duchenne from http://itunes.apple.com/gb/app/santas-sleigh-ride/id477668167

ARTICLE POSTED: 15 DECEMBER 2011 PERMANENT LINK
RantMedia has designed a fabulous new iPhone & iPad app called Santa’s Sleigh Ride where you get Santa and his reindeer to jump over toys, decorations and other festive things. The game is easy to play, yet highly addictive with increasingly fast and furious levels. "

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World Muscle Society 2011 Report - PPMD Community

World Muscle Society 2011 Report - PPMD Community: "At the recent World Muscle Society meeting, which took place in Portugal, a great deal of new data on exon skipping was presented, both on the status of current human clinical trials and on the efforts of investigators to improve the efficiency of the technique by combining exon-skipping with gene and stem cell delivery. Below are a few highlights from the meeting with the caveat that it was impossible to cover every poster and talk. "

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New gene therapy approach safe for patients with muscular dystrophy

New gene therapy approach safe for patients with muscular dystrophy: "Researchers at the University of North Carolina at Chapel Hill have shown that it is safe to cut and paste together different viruses in an effort to create the ultimate vehicle for gene therapy. In a phase I clinical trial, the investigators found no side effects from using a "chimeric" virus to deliver replacement genes for an essential muscle protein in patients with muscular dystrophy."

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