Wednesday, 11 July 2012

Action Alert! Contact your Senators to help save vital Duchenne programs at the CDC - PPMD Community

Action Alert! Contact your Senators to help save vital Duchenne programs at the CDC - PPMD Community: We need your voice to help save critical Duchenne related programs at the Center for Disease Control (CDC)!

Deadline: Friday, July 13

The Administration's Fiscal Year 2013 budget request again proposes to consolidate muscular dystrophy and other programs within the CDC's National Center for Birth Defects and Developmental Disabilities (NCBDDD) and to eliminate the funding level for the center. The work of the NCBDDD is directly responsible for much of the progress made over the last decade to improve care of those with Duchenne. Specifically, the development and issuance of the Care Considerations have increased the life expectancy by approximately 10 years, a remarkable improvement.

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