Thursday 5 March 2015

Important New Duchenne Steroid Protocol: Download the "PJ Nicholoff Steroid Protocol" - PPMD Community

Important New Duchenne Steroid Protocol: Download the "PJ Nicholoff Steroid Protocol" - PPMD Community: "Phillip James “PJ” Nicholoff was a vibrant, 31-year-old man living with Duchenne muscular dystrophy. He had an encyclopedic love of all college and professional sports; he and his family traveled all over the country to catch games. He had a degree in web design and worked his entire adult life. He enjoyed swimming, dating, and driving his own car – much like any other 31-year-old young man.
 
PJ had been treated with daily corticosteroids since the age of 6. He endured several pathologic fractures, likely a result of his steroid treatment and his non-ambulatory status. In November 2013, on his last trip to Florida, he fractured his humerus and hip, and was transported by plane to a hospital closer to his northern home. PJ had orthopedic surgery to manage both of these fractures. After these repairs, he developed respiratory distress, shock, and died. Review of the medical record suggested that he had not received consistent corticosteroid replacement during his hospitalizatio"



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