» NHS Delays Decision on Translarna Action Duchenne: "Action Duchenne has been informed that NHS England has delayed the CPAG meeting that was due to take place next week on the 9th of December. The meeting has been cancelled as NHS England are re-considering how it assesses new treatments.
We are extremely concerned and disappointed about this decision. You will recall that from our conference that the complex and overly long commissioning process for new treatments was called into question by our CEO. This delay of the CPAG is symptomatic of the fragile commissioning process."
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