Wednesday, 3 December 2014

» Please sign petition for full funding Translarna Action Duchenne

» Please sign petition for full funding Translarna Action Duchenne: "We would like to ask that our members support & sign the petition below for each of the UK NHS authorities to fully fund the costs for Translarna, which would be the first treatment for Duchenne to become available to patients in the UK.

Action Duchenne’s staff have been working for the previous 3 months with NHS England, PTC Therapeutics and other UK Duchenne charities to ensure that those who are in the decision making process have been made fully aware of the importance of funding of this first treatment for Duchenne."



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