Tuesday 22 February 2011
Parent Project Muscular Dystrophy: Race Calendar
Parent Project Muscular Dystrophy: Race Calendar: "Come to run, come to cheer, or find a runner to sponsor. Even if you can't be there in person, you can still track the progress of the race or the fundraising efforts online!"
Run fo our sons - Disneyland 1/2 marathon
Parent Project Muscular Dystrophy:: "NEW FOR 2011: If you ran this race with the Run For Our Sons team last year, receive FREE entry into the race this year!"
Quality of Standards of Care - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy
Quality of Standards of Care - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "We will be inviting participants to attend focus group meetings which will take place in London and will last no longer than 2 hours (9.30am-11.30am). The focus group meetings will take place on Monday, 21st March and Friday, 1st April 2011 at the Royal Society of Medicine. The venue is situated at: 1 Wimpole Street, London, W1G 0AE."
Thursday 17 February 2011
Interleukin-10 reduces the pathology of mdx muscular dystrophy by deactivating M1 macrophages and modulating macrophage phenotype. - Duchennepedia - Action Duchenne - Fighting for a cure for muscular dystrophy
Interleukin-10 reduces the pathology of mdx muscular dystrophy by deactivating M1 macrophages and modulating macrophage phenotype. - Duchennepedia - Action Duchenne - Fighting for a cure for muscular dystrophy: "Together, the results show that IL-10 plays a significant regulatory role in muscular dystrophy that may be caused by reducing M1 macrophage activation and cytotoxicity, increasing M2c macrophage activation and modulating muscle differentiation."
We need YOUR help to further our Advocacy efforts in Washington, DC!
Parent Project Muscular Dystrophy:: "How can YOU help? We need you to make a phone call and send an email!
ACTION 1. Phone Call: Please take a moment to CALL your Senators and Representatives and urge them to sign onto our multimember letter being circulated by Representative Matsui in the House and Senators Wicker in the Senate.
Wondering what to say when you call your Senators and Congressman?
Dont worry, we have provided you with a script: Senate Phone Script House Phone Script
To look up their phone number click here
ACTION 2. Send Action Alert NOW: Email your Representative and Senators-PPMD is requesting your support by clicking through our email action alert below. It takes two minutes!
This simple one step alert will automatically send our message to your Senators and Representative and will also allow you to forward the message to friends and family who may also want to support our Advocacy Agenda.
Click here to send an email to your members of Congress!
Thank you so much for taking the time to support these very important initiatives. "
ACTION 1. Phone Call: Please take a moment to CALL your Senators and Representatives and urge them to sign onto our multimember letter being circulated by Representative Matsui in the House and Senators Wicker in the Senate.
Wondering what to say when you call your Senators and Congressman?
Dont worry, we have provided you with a script: Senate Phone Script House Phone Script
To look up their phone number click here
ACTION 2. Send Action Alert NOW: Email your Representative and Senators-PPMD is requesting your support by clicking through our email action alert below. It takes two minutes!
This simple one step alert will automatically send our message to your Senators and Representative and will also allow you to forward the message to friends and family who may also want to support our Advocacy Agenda.
Click here to send an email to your members of Congress!
Thank you so much for taking the time to support these very important initiatives. "
GSK and Prosensa announce start of Phase III study of investigational Duchenne Muscular Dystrophy medication
GSK and Prosensa announce start of Phase III study of investigational Duchenne Muscular Dystrophy medication: "GlaxoSmithKline (GSK) and Prosensa today announced that the first patient has commenced treatment in the Phase III clinical study investigating GSK2402968 (`968), in ambulant boys with Duchenne Muscular Dystrophy (DMD), who have a dystrophin gene mutation amenable to an exon 51 skip (up to 13% of boys with DMD). Commencement of this study confirms previously announced plans to progress this asset into Phase III.
This randomised, placebo controlled study will enrol 180 patients, from up to 18 countries, and is currently the most advanced ongoing study for this rare, severely debilitating, neuromuscular disease.
The study is designed to assess the efficacy and safety of GSK968 6mg/kg, once weekly, compared to placebo, for 48 weeks in ambulant boys over 5 years of age with DMD The primary efficacy endpoint is a measure of muscle function using the six minute walking distance test."
This randomised, placebo controlled study will enrol 180 patients, from up to 18 countries, and is currently the most advanced ongoing study for this rare, severely debilitating, neuromuscular disease.
The study is designed to assess the efficacy and safety of GSK968 6mg/kg, once weekly, compared to placebo, for 48 weeks in ambulant boys over 5 years of age with DMD The primary efficacy endpoint is a measure of muscle function using the six minute walking distance test."
Lack of DOT1L enzyme could lead to some types of heart disease: Study
Lack of DOT1L enzyme could lead to some types of heart disease: Study: "Everyone knows chocolate is critical to a happy Valentine's Day. Now scientists are one step closer to knowing what makes a heart happy the rest of the year.
It's a gene called DOT1L, and if you don't have enough of the DOT1L enzyme, you could be at risk for some types of heart disease. These findings from a study led by researchers at the University of North Carolina at Chapel Hill School of Medicine appear in the Feb. 1, 2011 issue of the journal Genes and Development."
It's a gene called DOT1L, and if you don't have enough of the DOT1L enzyme, you could be at risk for some types of heart disease. These findings from a study led by researchers at the University of North Carolina at Chapel Hill School of Medicine appear in the Feb. 1, 2011 issue of the journal Genes and Development."
Action Duchenne Love Runs – there’s still time to register and be officially timed - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy
Action Duchenne Love Runs – there’s still time to register and be officially timed - View News Article - Action Duchenne - Fighting for a cure for muscular dystrophy: "We’re in the final few days before the Action Duchenne Love Runs for 2011. It’s still not too late to register your entry for the 10k and get a chip so that your run will be timed. And of course you can just turn up on the day."
Parent Project Muscular Dystrophy: 2011 Advocacy Conference & One Voice Summit
Parent Project Muscular Dystrophy: 2011 Advocacy Conference & One Voice Summit: "February 14 will mark the ten-year anniversary of the introduction of the MD-CARE Act, the first muscular dystrophy legislation passed by Congress. PPMD led the charge for this critical piece of legislation, which established the National Institutes of Health (NIH) Muscular Dystrophy Coordinating Committee (MDCC) and the Centers for Disease Control and Prevention (CDC) data collection on muscular dystrophy initiative. The MD-CARE Act also called for the creation of scientific Centers of Excellence, named after the late Senator Paul D. Wellstone, across the country to accelerate research on muscular dystrophy. In 2008, again under the leadership and commitment of PPMD’s advocacy campaign, Congress extended the MD-CARE Act to continue funding vital research."
Research Review No. 28 Some new Drugs. - Karl2346 - Stopwasting - Action Duchenne - Fighting for a cure for muscular dystrophy
Research Review No. 28 Some new Drugs. - Karl2346 - Stopwasting - Action Duchenne - Fighting for a cure for muscular dystrophy: "While we are waiting for curative treatments such as Exon-skipping, and other types of gene therapy to become available, it is important to keep the DMD patients as able to maintain as much muscle strength as possible for as long as possible. This is because generally when something in the body is lost it is usually lost for good. Currently only steroids are in use to maintain muscle strength longer, but generally they only delay it for about two years."
We need YOUR help to further our Advocacy efforts in Washington, DC
Google Reader: "We need YOUR help to further our Advocacy efforts in Washington, DC
from Fling for Logan by garethmitchelson
Google Reader (27): 'We need YOUR help to further our Advocacy efforts in Washington, DC!'
How can YOU help? We need you to make a phone call and send an email!
ACTION 1. Phone Call: Please take a moment to CALL your Senators and Representatives and urge them to sign onto our multimember letter being circulated by Representative Matsui in the House and Senators Wicker in the Senate.
Wondering what to say when you call your Senators and Congressman?
Dont worry, we have provided you with a script: Senate Phone Script House Phone Script
To look up their phone number click here
ACTION 2. Send Action Alert NOW: Email your Representative and Senators-PPMD is requesting your support by clicking through our email action alert below. It takes two minutes!
This simple one step alert will automatically send our message to your Senators and Representative and will also allow you to forward the message to friends and family who may also want to support our Advocacy Agenda.
Click here to send an email to your members of Congress!"
from Fling for Logan by garethmitchelson
Google Reader (27): 'We need YOUR help to further our Advocacy efforts in Washington, DC!'
How can YOU help? We need you to make a phone call and send an email!
ACTION 1. Phone Call: Please take a moment to CALL your Senators and Representatives and urge them to sign onto our multimember letter being circulated by Representative Matsui in the House and Senators Wicker in the Senate.
Wondering what to say when you call your Senators and Congressman?
Dont worry, we have provided you with a script: Senate Phone Script House Phone Script
To look up their phone number click here
ACTION 2. Send Action Alert NOW: Email your Representative and Senators-PPMD is requesting your support by clicking through our email action alert below. It takes two minutes!
This simple one step alert will automatically send our message to your Senators and Representative and will also allow you to forward the message to friends and family who may also want to support our Advocacy Agenda.
Click here to send an email to your members of Congress!"
Duchenne Foundation
Duchenne Foundation: "Welcome to the homepage of Duchenne Foundation, the only
national non-profit specifically for Australian families affected
by Duchenne muscular dystrophy."
national non-profit specifically for Australian families affected
by Duchenne muscular dystrophy."
Son Shine Awards - Duchenne Foundation
Son Shine Awards - Duchenne Foundation: "The ‘SonShine’ Achievement Awards are designed specifically to celebrate the achievements and strengths of boys with Duchenne muscular dystrophy. "
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