We need YOUR help to further our Advocacy efforts in Washington, DC

Google Reader: "We need YOUR help to further our Advocacy efforts in Washington, DC
from Fling for Logan by garethmitchelson
Google Reader (27): 'We need YOUR help to further our Advocacy efforts in Washington, DC!'
How can YOU help? We need you to make a phone call and send an email!

ACTION 1. Phone Call: Please take a moment to CALL your Senators and Representatives and urge them to sign onto our multimember letter being circulated by Representative Matsui in the House and Senators Wicker in the Senate.

Wondering what to say when you call your Senators and Congressman?

Dont worry, we have provided you with a script: Senate Phone Script House Phone Script

To look up their phone number click here

ACTION 2. Send Action Alert NOW: Email your Representative and Senators-PPMD is requesting your support by clicking through our email action alert below. It takes two minutes!

This simple one step alert will automatically send our message to your Senators and Representative and will also allow you to forward the message to friends and family who may also want to support our Advocacy Agenda.

Click here to send an email to your members of Congress!"

Duchenne Foundation

Duchenne Foundation: "Welcome to the homepage of Duchenne Foundation, the only
national non-profit specifically for Australian families affected
by Duchenne muscular dystrophy."

Son Shine Awards - Duchenne Foundation

Son Shine Awards - Duchenne Foundation: "The ‘SonShine’ Achievement Awards are designed specifically to celebrate the achievements and strengths of boys with Duchenne muscular dystrophy. "

Biglycan protein

A novel potential therapy based on a natural human protein significantly slows muscle damage and improves function in mice who have the same genetic mutation as boys with the most common form of muscular dystrophy, according to a paper published online Dec. 27 in the Proceedings of the National Academy of Sciences. further details here

MU researcher hopes to protect cardiac muscles for children with DMD

MU researcher hopes to protect cardiac muscles for children with DMD: "Gene therapy researcher hopes to protect cardiac muscles for children with deadly disease
Children with Duchenne muscular dystrophy (DMD) face a future of rapidly weakening muscles, which usually leads to death by respiratory or cardiac failure before their 30th birthday. While researchers are hopeful that gene therapy could eventually evolve into an effective treatment, few have targeted the heart of the problem as much as Dongsheng Duan, PhD."

The Eileen McCallum Trust | Facebook

The Eileen McCallum Trust | Facebook: "The Eileen McCallum Trust Eileen McCallum will be starting next year's Edinburgh Half Marathon which takes place on Sunday 11th April 2011. The charity has taken 50 places and 16 have been allocated to River City cast and crew including Claire Knight, Billy McElhaney, Lisa Gardner, Gary Lamont, Keira Lucchesi and Andy Clark. To see the full lis..."

Recent AVI-4658 trial results have positive outcome - Duchennepedia - Action Duchenne - Fighting for a cure for muscular dystrophy

Recent AVI-4658 trial results have positive outcome - Duchennepedia - Action Duchenne - Fighting for a cure for muscular dystrophy: "Results from the recent AVI-4658 study* have been positive so far and are now awaiting further analysis in America by the sponsor AVI BioPharma. Two families that have participated in the trial in the UK share their experiences."