Denver Mayor proclaims June 26 "End Duchenne Day"

Middletown, OH – June 18, 2009 – 

Patricia A. Furlong, Founding President and CEO ofParent Project Muscular Dystrophy (PPMD), the largest non-profit organization in the United States focused on finding a cure for Duchenne muscular dystrophy (Duchenne), announced that the Mayor of Denver, Colorado, John W. Hickenlooper, has proclaimed June 26, 2010 “End Duchenne Day” in recognition of PPMD’s 16th Annual Connect Conference. Denver is playing host to the country’s largest Duchenne-specific, international conference, June 24 – 27, 2010.

Rachel's Fling on Ben Nevis

On July 17 this year Rachel McLean will be attempting to carry out a sponsored Fling for Logan challenge.

Aiming high is nothing new for Rachel. A relatively late starter to Highland Dancing she rapidly progressed through the ranks to reach the peak in 2004 when she was crowned World Highland Dancing Champion.

However, this challenge will see Rachel climb to new heights - she has decided to climb Scotland's Highest Mountain - Ben Nevis - and plans to perform her Highland Fling on the summit!

Not content with miles to treck and hill to climb - she will need to carry her music and kilt outfit to the top with her.

You can follow Rachel's progess on the blog and sponsor her on the sponsor page.

Australias Fling for Logan

At last I have had a chance to upload video footage from the fling for Logan organised by South Queensland Region Highland Dancing inc.

Having just finished watching it I can only say again many, many thanks to all those involved in it - the organisers, the dancers (all 411 of them) and not least the piper who had to play them all into place.

Gareth

Marathon's map

I have now included an events map in the flingforlogan.com website.

This shows the locations (and dates) of the various fundraising events that are coming up - for now it lists the forthcoming marathons and half-marathons in the UK and US that can be run for Duchenne.

Please checkout the website for details.

Run for our sons

Parent Project Muscular Dystrophy (the US Charity fighting to end Duchenne) has a 'run for our sons' fundraising campaign.

If you live in the US and want to find out how you can get involved - visit the parentprojectMD.org website for details.

Upcoming events include:

June 26           Seattle 1/2 marathon
July 11            Missoula 1/2 marathon
September 5   Disneyland 1/2 marathon
October 10    Chicago marathon
October 17    Denver marathon
November 7  New York marathon

Forthcoming Events

Are you a runner?

Would you consider running for Action Duchenne?

The following races are coming up and can all be run on behalf of the Charity:

May 23           Edinburgh Marathon
May 31           BUPA 10k (London)
July 3              Birmingham & Black Country 1/2 marathon
September 5    Bristol 1/2 Marathon
September 12  Robin Hood Run (Nottingham)
October 11     Cardiff 1/2 marathon

Check out the Action Duchenne events page for contact details.

Australia's Fling for Logan

I have just had an email from Margaret Johnston updating me on the Fling for Logan that was held on the weekend of the Champion of Champions in Australia.

I do not know yet hoe many dancers too part but it seems that a great time was had by all the competitors (and parents) who took part.

Hopefully I will have some details to post soon.

Anyway, many thanks to all who participated and helped further raise awareness of the Duchenne condition in Australia and further afield.

Gareth