Friday 9 May 2014

DuchenneConnect Annual Report: Registry Growth & Expanded Services - PPMD Community

DuchenneConnect Annual Report: Registry Growth & Expanded Services - PPMD Community: "This past year has brought many new and exciting changes to DuchenneConnect, the robust and cutting-edge registry and resource that connects Duchenne and Becker patients with actively recruiting clinical trials and research studies, and educates patients and families about Duchenne and Becker research. The registry, which was established in 2007, has matured beyond a standard registry and into an innovative resource for the entire Duchenne and Becker community. This 2013 Annual Report (PDF) highlights how we have grown and expanded our services over the past year. "



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